Lorenzo's father, Augusto Odone, said that Lorenzo had come down with aspiration pneumonia. He began bleeding heavily, and Lorenzo died before an ambulance arrived. According to his dad, Lorenzo, " could not see or communicate, but he was still with us," Odone said Friday. Lorenzo Odone at age 6 was diagnosed to have adrenoleukodystrophy, or ALD. This is caused by a genetic mutation that causes the neurological system to break down. Lorenzo was originally given two years to live. The disease leads to chain fatty acids in cells damaging the membranes that coat nerve fibers in the brain. Augusto developed an oil that helped his son fight the neurological disease. A 2005 study, showed that a treatment made from olive and rapeseed oils (patented by Augusto Odone) may prevent or delay the disease's symptoms for most boys with ALD.
Augusto plans to author a book about his son's battle with the disease.